My friend Anne and I saw the Indigo Girls at Wolf Trap in 2015. I could barely move that summer, and going to the concert was a big deal. Before we went, Anne told me she’d ridden her bike to a pool, swum laps, and read a book that day. I couldn’t believe it – like, she could sustain concentration long enough to read a book? When was the last time I’d read a book? Swimming and biking were beyond me, so I didn’t even think about them. The book, I fixated on that. Reading seemed like something I should be able to attain – I have a master’s degree in English Lit. I’m a professional reader. And yet, when Anne spoke to me, reading a book from start to finish seemed as impossible as climbing Mount Everest.
The month of the concert, a weird rash had erupted on my legs. Before the rash appeared, I’d been following my father around Cleveland Metroparks, climbing railroad bridges and doing other outdoorsy things that would have made my mother panic, if she were still alive. I didn’t think to check myself for ticks – I don’t know why. I just didn’t. I was caught up in trying to understand my father’s boyhood, the events that made him the man he became. I was writing my way closer to him, and I did not think about myself. (This is a pattern.)
A few weeks later, I wore shorts and sandals and hiked around Multnomah Falls with Carl. I didn’t check myself for ticks there either. I was having a spiritual experience, completely blissed out on the woods and Portland. Why on earth would I stop and look for ticks?
And then, the rash appeared. Weird pinprick splotches on both calves, just below the knees. It looked like I was bleeding under the skin. And my GP tested me for Lyme and told me I didn’t have Lyme, even though I was too early in the testing window to know. And I didn’t know enough at the time to even know that detail I have just written. My doctor alluded to chronic Lyme as being a completely made up thing, the medical equivalent of a unicorn. Only crazy people had chronic Lyme disease.
I tape recorded him as he spoke because I didn’t trust him. Or I didn’t trust myself.
On the recording, I sound so smart and confident, completely opposite of how I felt in the moment. I do not sound like a person who tape records a doctor because she’s afraid he’s gaslighting her, because gaslighting is what she expects from men in authority. I sound like a person who is relieved because the doctor tells her what she wants to hear –– she’s healthy. So she ignores all the terrible symptoms that wax and wane and escalate. They are all in her head. They are hormones or hysteria. They are something else and something else and something else. She accepts his version of reality at the expense of her own. (This is a pattern I’m learning to break.)
Anne came with me to a follow up appointment because I needed someone else in the room, and that night we saw Indigo Girls.
We sat outside, our feet touching the grass. We drank wine and ate chocolate and sang “Shame on You” and “Closer to Fine” and “Galileo,” and so many songs that spoke to us when we were younger and had no clue how our lives would unfold. When I think about that summer, I don’t think about all the hours I spent in bed, confused and scared. I think about that concert, about the songs of my past that held such promise for my future.
I’m writing a spiritual memoir and am getting closer to finishing — or “Closer to Fine” – as Anne wrote on Twitter the other day. My treatment for chronic Lyme disease is working, even if my symptoms are still scary and still make me feel like I’m losing my grip on reality. Chronic disease can also feel like gaslighting. I don’t trust my perception of reality. My perception of reality is distorted by a disease that impacts my senses and central nervous system.
This week, to calm myself, I watched Indigo Girls performances from the 1990s, and I rewrote the first chapter of my book, which is about what it means to trust in the multiple paths that carry us forward.
At the end of the 2015 Wolf Trap concert, Indigo Girls sang “Closer to Fine,” a song from their second album, a song that has defined their career. This song is also about what it means to seek, to trust, to take refuge. There’s more than one answer to these questions.
The chorus of “Closer to Fine” inclines toward the mountain top, the “look out,” but my spiritual awakenings have always begun on the ground. That’s where I go to meditate, or where I lay when I’m too tired to stand. On the ground, I let go of ego and expectation.
This week, I was so tired, I fell asleep on my meditation cushion. I found myself thinking of that song title, the words Anne tweeted –– Closer to Fine –– about how writing and spirituality can be a movement toward something, but not a finish line. This isn’t the answer I – or my students – want to hear, but it’s a liberating truth I need to hear. In this confusion, or darkness, my friends light the way on the journey. They remind me that wandering isn’t the same as being lost.